 |
DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.Thank You. |
 |
The mounting cost of bandages is most often not covered by an EB family's health insurance. |  |
89.4¢ of every dollar donated goes directly to EB patients, families, and research. |
Support a Local Event
Louisiana
1st Annual Tripp Roth Memorial Softball Blowout
Friday, February 24, 2012 at 6:00pm until Sunday, February 26, 2012 at 5:00pm
Tripp's Troops Softball & WSL/ASA are proud to invite you to our "1st Annual Tripp Roth Memorial Softball Blowout"!!
Gather to play ball in honor of little Tripp and to help raise awareness of EB!
Join us on Facebook: www.facebook.com/TrippsTroopsSoftball
Any contributions can be sent to Mollie Walker at 14398 Sandy Bluff Drive, Port Vincent, LA 70726
Rock and Roll Half Marathon
Sunday, March 4, 2012
New Orleans, LA
The run is organized in the memory of Tripp Roth to heighten EB awareness and to raise money for DebRA of America. To learn more about this event click here.
To join the team and raise money for EB awareness contact scottwalker [at] hearst [dot] com.
New York
Rafi’s Run
Sunday, March 11th, 2012, 10:00am
Riverside Park at West 103rd Street
New York, New York
Website: www.rafisrun.com
Please sign up to run or walk the 5k by clicking this link: www.rafisrun.com/signup/
Kentucky
7th Annual Butterfly Fashion Show Luncheon and Silent Auction
Saturday, March 17, 2012, 11:00am
The Olmsted
3701 Frankfort Avenue
St Matthews, KY 40207-2556
For more information Click Here.
To purchase tickets Click Here.
To learn more about sponsorship opportunities or to become a sponsor Click Here.
For any additional information or to learn more about this event contact Leslie Rader at (502)299-0826, or via email at leslie [dot] rader [at] gmail [dot] com
If you would like to plan a special event to benefit Debra or raise awareness for EB, please contact
the Debra Office at 212-868-1573 x106, events [at] debra [dot] org.
Or, visit the Plan Local Events page.
Past Events
Aubrey’s Butterfly 5K Walk
Saturday, October 22, 2011, 8:30 AM - 11:30 AM
Dimondale, MI 48821
For more information visit http://aubreys5k.com
Maciefest 2011: Epidermolysis Bullosa 5K/Run Walk
Saturday, August 13, 2011
Le Mars, IA
For more information contact, Katie Majeres, 712-540-2173
or email jkmajeres [at] hotmail [dot] com
View event flyer
3rd Annual Tyler Fisher Spaghetti Dinner & Auction
Saturday, August 13, 2011
Brice United Methodist Church, Brice, OH
For more info, please contact Trisha at tfeba [at] hotmail [dot] com
Or visit www.tylerfisherebawareness.org
View event flyer
1st Annual Ride for Debra Down Abby Road
Saturday, August 20, 2011
Hardwick, VT
For more information visit www.theridefordebradownabbyroad.com
Tyler Fisher Open House for EB Awareness
July 9th, 2011, 4 PM to 8 PM
8266 West Ohio State Lane, Lancaster, OH 43130
For more information visit www.tylerfisherebawareness.org
View event flyer
An Evening of Song
May 14, 2011
The Gilman Theater at the Mandell Jewish Community Center
335 Bloomfield Avenue, West Hartford, CT
View event flyer
Butterfly Wishes for Ellie
May 4, 2011, 6:30pm - 10:30pm
Dinner, Dancing and Silent Auction
The Park Tavern, 500 10th Street NE, Atlanta, GA
Click here for photos
Spring Into Support for EB
April 3, 2011, 1:00 pm – 4:00 pm
Cherry Valley Vineyards, Saylorsburg, PA
As part of her senior project, Michelle Palmisano decided to do a benefit/awareness event for EB; proceeds benefit Debra.
For more info, contact springintoeb [at] yahoo [dot] com .
EB Awareness T-Shirt Sale
February 28th - March 4, 2011, 10:45 am – 12:30 pm
Upper Arlington High School, Upper Arlington, OH
For her senior capstone project, Michelle Navarre is promoting EB Awareness by selling t-shirts which she has designed. All profits from the t-shirt sale will go to Debra. The t-shirt sale will be ongoing, before and after this event. Click here for details
Jonah’s Online EB Auction
4 day online auction, from books to jewelry items, to benefit Debra in honor of Jonah Williams. Please email Katie at jonahsebauction [at] gmail [dot] com .
February 24-27, 2011
Visit http://jonahsebauction.blogspot.com for more info.
Curing EB One Mile at a Time at the Chicago Marathon
Michael Marek ran the Chicago Marathon to raise awareness about EB and Debra.
October 10, 2010
Chicago, IL
Click here for photo
Butterfly Benefit
Fashion show and silent auction
March 27, 2010
Louisville, KY
Facebook Photos
2009 Photos
One in a Million
Throughout 2010
Miami, Florida
One in a Million is a yearlong celebration at the University of Miami whose mission this year is to raise awareness about EB and raise funds for Debra of America.
Click here for more information and photos
Go Back
Return to "Plan a Local Event"
Related Information/Links
Register your Event with Debra
Read about EB in Greater Depth
Donate
Understanding EB
Debra has partnered with America's Charities which makes it easy and convenient to make a donation.
Any contribution, large or small, helps
EB patients and families and makes
continued research possible.
DebRA's 2012
Patient Care Conference
Countdown to a Cure
Patient Care Conference
Countdown to a Cure
July 30, 2012 - August 2, 2012
Register Now
What is EB? helps teachers and students
understand the issues facing children with
dystrophic EB in the classroom.
of every dollar donated goes to EB
patients, families, and research.
